Last week, our family had an emotionally intense experience of the positive variety for once.
Like so many of our friends, we packed up the car with all manner of teen necessities, and drove many hours from home to deliver a child to college. But Matthew's route to college was, of course, anything but ordinary - and we were acutely aware of that.
For two days before school started, we had medical appointments in New Hampshire and Vermont, setting up a medical safety net, so that Matthew will hopefully have support nearby, in case he needs it. Around those visits, we explored Hanover and Brattleboro, and visited various local landmarks like the Cabot cheese creamery and the King Arthur Flour Factory Store. We had a lot of fun.
Our last night together in the hotel, Matthew sat on the bed and played his guitar. I asked him to play "Wonder Wall," by Oasis, a song he had sung many times in the hospital. The lyrics of that song always get to me:
"And all the roads we have to walk are winding
And all the lights that lead us there are blinding
There are many things that I
would like to say to you but I don't know how
Because maybe, you're gonna be the one that saves me
And after all, you're my wonderwall"
And after all, you're my wonderwall"
Listening to him, I recalled all the times he'd sung that for the doctors, and I thought of all the doctors who'd treated Matthew over the years, who had been his "wonderwall." The next day, on the way to Landmark College, we stopped and bought a stack of postcards (Vermont apparently lends itself to scenic postcards), and Matthew signed them, and I tucked them into my purse for later.
We went through registration and move-in, transforming Matthew's tiny shoebox of a room into a homey space. The whole family chipped in, with Matthew directing. By the end, the room looked great.
From this...
To this...
By 12:30, we were done, with time to spare before lunch. So, Matthew, Jon & Danny fanned out across the lawn in front of Matthew's dorm, and started winging the Frisbee to each other, pulling other kids into the game. I sat and watched Matthew, blending in with the other college freshmen, and felt I was witnessing a miracle.
That evening, after we'd attended parent orientation sessions, and eaten two meals with Matthew in the dining hall, and said a mini goodbye, knowing we'd see him again the next day, we returned to the hotel. I pulled out the stack of postcards, addressed them to the various members of our medical team, and wrote the same note on each one: "Today, Matthew started at Landmark College in Putney, Vermont. Thank you for helping us reach this day."
10 comments:
It was so nice to read about Matthew and the journey to college. I can't express how happy it made me. Jaime, you have been an inspiration to me. Your courage and determination is remarkable. You have so much to be proud of and thankful for. You have raised a terrific young man. He will continue to reach for the stars and amaze all of us. Congrats to Matthew for his determination as well. I hope to see you soon.
Jeff Kolodin
How inspiring. I love that Oasis song (don't the kids hate that we like the same music they do?!?) and I can see how it would be meaningful to you. I believe that Matthew is going to have a great college experience. Keep us updated.
From the parent of brain tumor survivor,
On 2/2/08, my son, then 12 years old, was diagnosed with a low grade astrocytoma of the optic chiasm and hypothalamus. Despite the devastating diagnosis, and uncertain future, we consider ourselves lucky in that our current course of treatment consists of only frequent MRI’s and ‘observation’. I found your blog on one of many internet searches for survivorship information. I occasionally check back for updates and have found your postings to be inspirational. My son entered his freshman year of high school last month and is happy, well adjusted & involved in many activities including competitive swimming and band. Best wishes for continued good health and good fortune. I look forward to the day, four years from now, where our family can share the college experience first hand. Thank you for sharing – hope springs eternal.
Thank you for the inspiration! I am the parent of a five-year-old in remission from brain cancer. College! Wow! What an exciting moment for your family. Thank you again, Carolyn Reibel
It's hard to believe that Matthew has already started college. What a happy milestone for you! We think about you and remember all the fun times at the Carderock Swim Club.
Mark, Usha, Rafael and Noah Abramovitz
Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!
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